Friday, July 31, 2009

In Loving Memory of Our Alex (January 18, 1996 – August 1, 2004)...

Many of you know Alex as a courageous cancer advocate, a hero, the lemonade girl who was an inspiration to millions around the world. To us, she was all of these things but so much more…We would like to share with you the Alex we knew…our beloved little girl.

From the beginning, Alex did things her way – she came into the world in a hurry 13 ½ years ago, arriving more than a month before her due date. The doctor and nurse prepared us for the fact that she would probably be underweight and would most likely have to stay at the hospital for a few extra days – well, we were all surprised when she weighed in at 7 lbs. 2 oz and left the hospital with us 24 hours later. Looking back, we should have known right then that there was something special about our girl…

  • Alex was bright and smart. She had a vast knowledge of medical terms and kept close track of her medications. She always knew the names and dosages of her medications, as many as 6-8 pills at a time. She always checked on us. Alex often surprised us by knowing unusual facts…For example, she was quick to offer an accurate explanation of what a ficus plant was to her older brother Patrick when he came across the word and wondered aloud what it was; she would sometimes chime in with a solution to a tricky math or word problem; and she seldom came across a word that she did not know the meaning of.

  • Alex was protective. So much so that she earned herself the nickname “mother.” Her constant watching over of her brothers and us was most often accompanied by loads of advice, phrased in an adorable way, “I really don’t think I would do that if I were you…” or “Do you think that is such a great idea?” or, our favorite, “ I’ve told you a million times not to do that!”

  • Alex was determined. When her younger brother Joey was born someone sent us a baby swing. As we tried to put the swing together, we got very frustrated because there were no directions included. We left the room, giving up on putting it together. When we returned to the room some time later Alex had the swing put together. She said “I just need a screwdriver to tighten the screws.” When we asked how she managed to put it together she responded -“you should never give up, it’s never good to give up”

  • Alex was funny. One of her aunts visited shortly before Alex passed away and we were trying to pick a movie to watch as a family. Her aunt recommended a movie but then quickly said, “Actually I don’t think it is a good idea.” When Alex asked her why she had changed her mind her Aunt said, “Well, it is kind of depressing.” Alex immediately turned to look at her and said “trust me, I can handle depressing.”

  • Alex was confident. She believed she could do anything; even it was a physical challenge or an obstacle to overcome. She often said that if she could just get an audition for American Idol, she could definitely make it into the top 10. She was also confident that she was capable of defending herself and others against any dangers, after all, she would say, “I know karate.”
  • Alex was courageous. Despite often struggling with pain, fatigue, and other side effects, Alex rarely complained. As a matter of fact, about two weeks before she died Alex told us, very emphatically, after hearing us respond to another inquiry about how she was feeling – “Tell them I am fine. I am fine.” She showed this courage everyday, insisting that she was fine, always telling us not to worry about her.

  • Alex was wise. Several years ago we gave her the suggestion that she might want to try walking with the help of crutches because it might allow her to get around faster. Without hesitation she said “Haven’t you ever heard the story of the tortoise and the hare?” Then she said, with a smirk on her face, “slow and steady wins the race.”

  • Alex was thoughtful and kind. She was generous with brothers, friends, and other children she met at the hospital. Alex also made sure that special occasions were celebrated the right way. She also made sure they included a special gift from her ~ earrings on Mother’s Day, a framed photo on Father’s Day, a stuffed hand-knit cat she made for her baby brother Joey’s first birthday, and homemade party hats for the whole family for another brother’s birthday.

  • Alex was a girl with plans –– she was looking forward to showing her baby brother around Philly; she was determined to attend the first day of third grade, and shortly before she passed was asking about getting a motorized wheelchair so she could keep up with her friends; She planned on learning how to swim, cross stitch, and walk again.

  • Alex was a girl with her own dreams – She wanted to be a world traveler and she dreamed of going to the Grand Canyon and to Paris. She dreamed of attending college but living in an apartment so she could have as many pets as she wanted; she promised her brother Eddie that, even though she wouldn’t let him live with her when they grew up as he suggested, he could visit as much as he wanted as long as he called first. She wanted to marry her prince charming and have a family, she even put her plans of becoming an astronaut on hold because she thought she would miss her kids too much on her long trips to outer space.

  • Alex was a girl who dreamed for others – She believed that she could make a difference for kids with cancer by selling lemonade. She knew that, with the help of others, she could raise a million dollars for the cause. She dreamed that one day there would be a cure for all children with cancer.

  • Alex was an inspiration – Her bravery and composure throughout her life inspired all of us to be stronger, better people. Her efforts to raise money and awareness for childhood cancer, while she fought so terribly against her own cancer, inspired all of us to help her cause. Her love of life inspired all of us to love our lives.

  • Alex was loved. Loved by us. Loved by her brothers, Patrick, Eddie, and Joey. Loved by her Grandparents. Loved by her Aunts, Uncles, and Cousins. Loved by her friends. Loved by her Doctors and Nurses. Loved by people everywhere who were inspired by her will to live.

So many times, we have heard people say that Alex “lost her battle with cancer.” We believe that this could not be farther from the truth. Alex won her battle in so many ways…by facing her cancer everyday but still managing to smile; by making the most of every moment; by never giving up hope; by living life to the fullest; and by leaving an incredible legacy of hope and inspiration for all of us.

We are proud of her; We love her; We are grateful for her life; We miss her everyday.

- Liz and Jay Scott, Alex's Parents

66 comments:

Olga Hernandez said...

Thank you so very much for sharing Alex with us. What an inspiration!

Anonymous said...

Thank you for sharing your precious, amazing daughter with us.

Ellen Hanson said...

Remembering Alex and your family today.
God Bless, Love, Ellen and the kids

Anonymous said...

Could it be that Alex the youngest Philadelphia Icon?
To our family she represents courage and wisdom so far beyond her years. A very special little girl here among us for a very special reason.
Thinking of you and your family and all who were blessed to know Alex personally today.

Anonymous said...

Thank you so much for sharing your thoughts, what a brave and inspirational angel Alex is and will always be!

Anonymous said...

What a beautiful story. I suggest that we all pitch in, in whatever way we can, to continue to fulfill Alex's dream. She made it easy for us..we just need to do it and to encourage our kids to get involved. Her legacy is beyond compare--thanks for sharing the story about her life.

Sue James said...

What wonderful memories you will always have of Alex. She is with you every day of your life.
To a brave soul...Happy Birthday Alex!

Kati Angelini said...

Wow, I feel like this story was made for my eyes. I hosted an Alex's Lemonade Stand last night, when this very beautiful story was written. As you were telling it, we were living it! Somehow, the severe thunderstorms magically cleared (thank you Alex!!) and we had an outdoor event with approx. 500 people! The streets were lined with folks eagerly donating to this wonderful cause. What started out as a tiny event turned into a large crowd fit with the Phillie Phanatic, Philadelphia sports teams, local businesses and residents all pitching in to be part of this wonderful wonderful entity known as Alex's Lemonade Stand! We raised about $2000 for cancer research last night, but more importantly we were all touched by an amazing angel, Alex Scott! I know she helped clear the dark clouds last night and lifted the storm, she is and always will be a beacon of light and a source of sunshine to all! Thanks for sharing a beautiful story!

Anonymous said...

Thank you so much for sharing a close & personal look at such an amazing child. Alex was truly special indeed & my only regret is that I never met her personally. May she smile down on you today with the love & protection she offered you nearly 14 years ago.

Marissa

Kimberly in PA said...

Thank you for sharing Alex with us. She was and is an inspiration to everyone. I thank Him for bringing such an awesome child into our lives. Her legacy and memory will continue to teach us how to truly live.

Tammy said...

Your tribute to Alex moved me to tears --- what a precious young lady and what an inspiration to us all....

Love and blessings,
Tammy

Anonymous said...

What do you say to someone who has lost an angel, but gained inspiration, hope, and love from so many people. She is inspiration to all of us. Who would of thought a child would teach us adults so much.

Gemma and Hope Bertelsen said...

An amazing tribute to an amazing young lady. Your last paragraph is perfect and very, very right.

You and your family are often in our thoughts and prayers.

Blessings - Gemma and Hope

Anonymous said...

I happened upon this blog as I learn more about our upcoming Lemonade Stand. What a gift you have given all of us - the chance to hear about such a wonderful soul, the "real" Alex, an everyday miracle in so many ways. Thank you for being willing to share with us and God bless you.

Jano said...

What a beautiful piece of writing and a perfect portrait of Alex! She was even more amazing than I knew. The fact that you remember so many details about her shows how much your whole family lived each moment of your life with her so fully. We revisit our grief in her loss and our appreciation of her gifts to us.

Love, Jano

Anonymous said...

Thanks for reminding me what a "true hero" is. I started the day reading this with a tear in my eye for Alex, all the kids who have lost the battle and those still fighting the war!

Aldo and Jane said...

What a great tribute! We loved reading about all of Alex's wonderful traits. She would be so proud of you guys! Thank you for all of your hard work for kids with cancer.
Love, Jane & Aldo

Anonymous said...

What amazing loving people you are... I pray today for the peace that surpasses all understanding to gaurd your hearts and minds. Thank you for all you do.

Love from the White family

Gallaghers said...

I thought about Alex this morning -- and then i saw this email. She was special and wonderful and we are so thankful we were blessed to know her. Your family is a great inspiration and Alex must be so proud to see what you/she has built to help others.
The Gallagher Girls (Sharon, Julia and Meghan)

Becca said...

This is beautiful! I am so proud to support the Alex's Lemonade Stand Foundation in memory of this wonderful little girl. And this is a true reminder of a real hero!

Sue K. Levine said...

Liz and Jay,

I woke up this morning thinking of Alex and all of her amazing accomplishments. Though I did not know Alex personally, your beautiful essay leaves me feeling like I did.

May her memory be a blessing to all of you.

Sue, Neil and Sarah Levine

The Kusers said...

What a beautiful tribute to your precious daughter who inspired so many, including our daughter Kristin who find strength in joining Alex in fighting cancer! We believe they are playing together in heaven. Thank you for being an inspiration!

traci said...

Wow! I can certainly see where Alex gained her incredible strength, from the love of her family. You guys are amazing parents for continuing the battle after many parents would feel defeated. Please pat yourselves on the back, and know that I admire the parents you are to your children and the inspiration you are to people everywhere. You are lucky to have Alex in your hearts and she is lucky to have you in hers.

ttigger4 said...

What can we say? Thanks for sharing more with all of us about your beautiful daughter. We never had the opportunity to meet Alex but it speaks volumes that she has inspired us to dedicate five summers of our time to raise over $20,000 for the cause. Think of how many people she has inspired and how many lives she continues to touch as the fruits of her idea make a real impact in the lives of kids with cancer yesterday, today, and in the future. Her spirit lives on. We thank you for sharing her love. We thank her for making such a difference in our lives.
Sincerely, Julie, Jay, Joseph, and Michael Mandes

Anonymous said...

I have been thinking of all of you this passed week knowing Alex's anniversary was near. It never ceases to amaze me how both of you have been able to write such wonderful mmeories so beautifully for all to share. She was "my Hero and role Model" and continues to be with inspiration from both of you. Ann

Anonymous said...

I paid a visit to Alex's very first lemonade stand at your home. I was inspired by the bravery and sincerity of your darling daughter.
While away on vacation in the mountains of Virginia, the local paper ran the story of her passing. I could not believe that they even knew about Alex and her dream of curing childhood cancer. However, it did not surprise me for long, as Alex's mission transcends all boundaries, seen and unseen.
My thoughts and prayers are with her family and friends today as they remember their loss
yet rejoice in her memory.

Anonymous said...

This is a beautiful piece of writing and I am glad I got to read it and know what you knew...she is (because she will always remain that way) a wonderful and amazing girl. Reading this helped me in so many ways as less than three months ago i lost my young father to Cancer...i know he wasn't a child, but it helped me to know that 5 years later you can still remember these wonderful things about your child...I hope one day to remember those things about my dad.
Here's to all the children, parents, grandparents, brothers, sisters, cousins, and friends who have fought this brave battle and conquered it with everything they had! Like my dad said---I'm going to beat this one way or the other....
Thinking of you today more than you can even imagine...
Thank you.
Jessica

Anonymous said...

Children are our gift from God and I know Alex was so special, thank you for sharing. She is definitely a blessed angel. The world is a better place for her having been it. My thoughts and prayers are with you. Aug 4 is my dads birthday he and my mother both died of cancer as well. The character of your daughter can't be denied she was a world leader in her short lifetime. I am proud to have my association with your family and rejoice with you in her memory. Thank you for sharing and God bless you and your beautiful sons.

Peggy "Mom" said...

Thank you for all your family does for so many children! Alex's legacy becomes more powerful each day. The world is becoming a more caring place for us all thanks to the life Alex lived.

Peggy

Anonymous said...

When someone does a Google search for Alex's Lemonade Stand, you only need to type 'Alex' and the apostrophe. Of the several choices Google offers, Alex's Lemonade Stand is the first on the list, before any more letters are keyed in to the search. I thought it was fitting evidence that Alex did not lose her battle. She's winning it every day for other children, and in doing so, she's still one of the real winners in the world today.

gwen said...

Beautiful words you have written for a beautiful child. You are so right to say that Alex did not lose her battle with Cancer; she was a winner from the start of her life and will always be a winner and true inspiration to mankind. I have a 12 year old daughter (DOB Sept.1996)named Alexa. She proudly has participated in raising money for Alex's cause 3 times so far and looks forward to future fundraisers!!
You are both fantastic parents. Thank you for sharing your family with everyone...

Anonymous said...

That was an amazing tribute to your daughter. Thanks for sharing - Neil & Margot
www.teamsam.com

BenLand said...

what a wonderful daughter...and sister...and niece...etc....
her legacy will live on forever through the wonderful work she has done...

God bless...

Prospect said...

The world is grateful for Alex and her family.
Her story has been a source of bottomless inspiration.

Much love to you all!

- Jonathan

Christie Kwait said...

I will never forget the day that my daughter Marti, who was 2 and fighting Neuroblastoma, and I ran into Liz and Alex in the halls at CHOP. This was about 6 months before Alex left us. Alex was in her wheelchair. Marti was doing what 2 year olds do- a little dancing, a little talking to herself, a little playing.

As Liz and I chatted, I noticed Alex watching Marti intently, with a slight smile. I think she was soaking it in, and also thinking to herself that Marti was one of the kids she wanted to help.

Marti is seven, and healthy. I tell her all the time how lucky she is, that she survived Neuroblastoma, and that even if she doesn't remember, that she got to meet Alex, who was one of the most beautiful and courageous angels who ever lived.

-Christie Kwait

Anonymous said...

Thank you so much for sharing the wonderful legacy of your daughter. Her life continues to be an inspiration to live the best we can and to live above the troubles that are in each of our lives. Because I believe in the God of the Bible I believe death is not the end and we have the hope that we will be with those we love again. In the meantime they live on in our hearts and memories and are with us always. Again, thank you

Julia Rose said...

Alex, you are such an inspiration for everyone for the courage that you had to do what you did. Thank you so much for everything.

Anonymous said...

Thanks for sharing your memories of your precious daughter and family with the world. She will always be a special, vibrant young lady in our minds and hearts. Her legacy is that she has made a difference in the world, and we are all better people as a result of Alex.

Anonymous said...

awesome

Anonymous said...

That is absolutely beautiful. Thanks for allowing us that glimpse into the Alex you knew. She was an amazing girl. I feel grateful to have known her at all.
Thinking of the entire Scott family today. Thanks for all you are doing to help children and families affected by cancer.

Anonymous said...

As a father of 3, I realize I don't really understand how lucky I am to have my family's health. My daughter Alexis, has participated in your lemonade stand for the past 2 years. It is a honor to be part of such a cause. Alex must of been a true miracle in your life. Thank you for sharing your story and God speed to Alex and your family.

Anonymous said...

Thank you for the email & sharing your beautiful tribute to your daughter. It is amazing what Alex accomplished in such a brief time. It's also amazing what your family has accomplished in her honor in only 5 years. My best to all of you today, and every day after.
Sue

Anonymous said...

May she smile down on your family today knowing that you have all carried on her legacy with pride, love and inspiration ....God Bless

Anonymous said...

Thank you for sharing information about Alex as a person and not just a patient. You are an extraordinary family for carrying on her dreams. It is obvious where she got her courage. I lost a sister to an accident and I believe our loved ones are with us every day. I know you know this is true too.

Anonymous said...

Thank you for sharing this story. Alex has inspired my child to help others!

Anonymous said...

thank you for sharing your story of your beautiful daughter with all of us. I cannot wait to read this over again with my own children tomorrow. We will hold our 3rd annual Alex's Lemonade Stand next Saturday, and will be thinking of your little angel and your beautiful family. God Bless You

Mindy MacRone-Wojton said...

Thank you for the gift of your daughter and her story. I especially loved reading the many ways that she "won her battle with cancer." It is so obvious that children like Alex have the power and conviction to change the world!
My daughter recently celebrated her 6th birthday and 5 1/2 years as a neuroblastoma survivor. We will continue to join you and Alex's Lemonade Stand Foundation in the fight to find a cure for Childhood Cancer!

Anonymous said...

god bless your family. alex truly was and always will be, as you said, "an incredible legacy of hope." alex is in my prayers and thoughts, as are all families struggling to overcome the loss of a child.
l.l., pennsylvania

Anonymous said...

Alex is such an inspiration to the world..she is a hero to our family...and truly an angel watching over all children battling Cancer...God Bless her Family.

Rebecca Timlin-Scalera said...

Liz and Jay, thinking of you guys today and I never cease to be amazed at your strength and the ay in which you carry on Alex's legacy. It is so wonderful to read all of these details about her personality. She is absolutely unique and an inspiration to everyone. and I can't believe she put that swing together!

Anonymous said...

even though i never got to now alex during the short time she was with us ,i feel that she has tuched my heart in a way that cant be put into words.

M.Hults-Morkos said...

Alex did so much in her lifetime, we are all blessed by what she accomplished. Originally from Central NJ, I had followed her story. Yet, being in Maryland for almost 10 years now, her story follows me. It is so wonderful to see the stores that partner with the foundation, and ways we can keep supporting the good work that you all do, and help to keep Alex's legacy alive and well. I just hope I can achieve as much as Alex did in her lifetime - or at least strive to do my best in all I do, as a tribute to Alex and many of our young children with cancer. What an inspiration - thank you !

Anonymous said...

My heart and prayers are with you.... Thank you for continuing what Alex started!!! I only wish we were all as brave as she was... Your tribute to her is an inspiration to all.. Know she is looking down and watching over you all from the wings of heaven...

Monica Mawyer, WV

Lauren Boerlin said...

As a parent who has lost a child to pediatric cancer, I am grateful to Alex, for she has given so much HOPE to those who are left to morn our loved ones. What one glass of lemonade did for others is amazing! I could visualize Alex saying such profound statements at such a young age. How blessed we are to have such great memories of our precious children. Alex is a treasure.

Anonymous said...

That was so touching. God bless
A 12 year old

Anonymous said...

Your daughter, Alex is truly an inspiration! Her spirit lives on...

Anonymous said...

What a special story and what a special little girl. Thank you for sharing. We love hosting lemonade stands and helping kids with Cancer. This story reminds us why we began hosting stands.

Shannon Staino said...

What an incredible little girl. I truly believe in angels, and if God puts them on this earth to make a difference and help others...Alex was definitely one!!! Your family inspires me so. Alex is our little hero and without her, many children's prognoses may have been different and for this I thank you! Our family will continue to to live Alex's mission and hope everyday for a cure for childhood cancer. My son Brett will grow up knowing Alex as if she was a close friend, because to us, she has been our angel and we will never forget. Thank you Scott family for continuing Alex's legacy and helping so many others who are so appreciative of all you've done and continue to do. We love you as if you were part of our own family. To many, many more years fighting!
Our love,
The Staino Family
Cape May County, NJ

tony said...

What a beautiful angel that God so graciously loaned to you and the rest of the world that are inspired by her. Cancer really sucks. My lil grandson "Baby Isaac" aka my Million Dollar Smile was born with neuroblastoma. I have seen him many times knocking on heavens doors but no matter how sick or how well a beautiful lil smile always on his face. Thanks to God he was healed of cancer a few months back and will be turning 2 years old on Aug 20th. He has not had use of his legs since about 3 months. If you seen him in his lil wheelchair racing down the sidewalk with his older brothers and sister or doing his famous army crawling full speed ahead across the living room floor you would never realize he is just dragging his lil legs behind him. Thanks to your lil girls courage and love for children perhaps my lil grandson is here today because of some new technology that was brought about by your darling angels unselfish courage all the way til the end with her lil lemonade stand. Thank you Alex and your family for allowing you be yourself to accomplish your dreams and not hold you back. We never know why some go and some stay. My daughter was 35 years old when she lost her battle to cancer 5 years ago so I know the lose a child is overwhelming. I believe however that the loss of a young child can be more devastating than the loss of an older child in a weird sort of way. May God richly bless you and each year that goes by as you celebrate lil Alex's life may you feel her presence and strength to get you through another year. With her work load her on earth I am sure she has a full schedule going in heaven. When I was going with my other daughter to yearly candlelight service after the loss of my other lil grandson Kaleb the speaker said that when you look down and find a penny it is your special child that has gone home letting you know they are ok and they love you. You would not believe how many pennies I have found in the last 5 years from my daughter and the last 4 from my grandson. I am sure Alex has dropped you a few down herself. Thank you so very much for your story and also for allowing me to share mine. Somehow cancer families are threaded together with that certain familiarity of I understand and love for one another even if they never meet.
May God give you comfort and strength to continue on with Alex's dreams
Baby Isaac's Grams
Bakersfield CA

Anonymous said...

Thank you...it definitely puts life into perspective.

Anonymous said...

Wouldn't the world be a better place if it were filled with wonderful children such as Alex? She was obviously wise beyond her years; and her legacy continues to be a positive influence on many lives. We will all continue to work towards her goal in her memory - Happy Re-Birthday Alex...

Corinne Linardic said...

Please know that you have changed the profile of pediatric cancer research forever. I am so proud to be part of ALSF, and proud to carry on Alex's legacy.

Anonymous said...

Today I have been complaining of being tired. Hmmm... How shameful!

Suzanne said...

The world can certainly see the Alex got her courage, grace and dignity from her family and those who loved her most. It was a humbling experience to meet Liz and Jay. I was so very overwhelmed and honored to meet some of the children and families who are a part of ALSF at Cool U. They are all an inspiration and a gift to all of us. My deepest and sincerest thanks and gratitude to everyone involved with such a wonderful foundation. Through your gift of selflessness, we have become a more caring and appreciative society. I pray that God continues to bless all of you and give you strength. Please know that although you do not know our names or our faces, our thoughts, wishes, prayers and hearts are with each one of you always.

Anonymous said...

Thank God, thank you for Alex and for sharing her with the world. Thank you. God bless you.

Anonymous said...

Thank you so much for sharing who Alex was with all of us. I am a tearful mess but so glad that I read your words. What a remarkable young lady. I know you were very proud of her. God bless you all .

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